| ABSTRACT | 第4页 |
| 1 INTRODUCTION | 第8-28页 |
| 1.1 Study Backgound | 第8-11页 |
| 1.2 Significance of the Study | 第11-15页 |
| 1.3 Argument and objectives | 第15-16页 |
| 1.4 Review of Scholar Studies | 第16-23页 |
| 1.5 Framework | 第23-26页 |
| 1.6 Analysis of the Comprehensive Data Survey | 第26-28页 |
| 1.6.1 Origin of the respondents | 第26-27页 |
| 1.6.2 Possibility of treatment close to China | 第27-28页 |
| 2 NEUROBLASTOMA | 第28-30页 |
| 3 ECONOMIC ASPECTS | 第30-42页 |
| 3.1 Coverage of the treatment in China by the healthcare system | 第30-32页 |
| 3.1.1 Commercial insurances | 第31-32页 |
| 3.2 Different types of public insurances and private platforms | 第32-33页 |
| 3.3 Expense on NB treatment related to income | 第33-36页 |
| 3.4 Availability of treatment in China | 第36-41页 |
| 3.5 (Un)availability of treatment abroad provided by the public healthcare system | 第41-42页 |
| 4 CLINICAL ASPECTS | 第42-52页 |
| 4.1 Reliance on the treatment | 第42-45页 |
| 4.1.1 Second opinion | 第42-43页 |
| 4.1.2 Alternative treatments | 第43-44页 |
| 4.1.3 Confidence in the professionals and drugs | 第44-45页 |
| 4.2 Diagnostic speed | 第45-46页 |
| 4.3 Procedures | 第46-48页 |
| 4.4 Availability of the doctors | 第48-52页 |
| 5 ASSISTANCE ASPECTS | 第52-63页 |
| 5.1 Sources of information | 第52-54页 |
| 5.1.1 Access to information to ask for a second opinion | 第54页 |
| 5.2 Hospitalization services | 第54-57页 |
| 5.3 Privacy | 第57-59页 |
| 5.4 Prevention | 第59-60页 |
| 5.5 Psychological support | 第60-61页 |
| 5.6 Pain management | 第61-63页 |
| 6 OVERALL SATISFACTION AND IMPROVEMENT PROPOSALS MADE BY THEUSERS | 第63-66页 |
| 7 CONCLUSIONS | 第66-71页 |
| Bibliography | 第71-74页 |
| Appendix 1: Questionnaire | 第74-83页 |
| Appendix 2: Interviews | 第83-122页 |
| Beijing family | 第83-93页 |
| Yunnan, Kunming family | 第93-103页 |
| Shandong, Zibo family | 第103-111页 |
| Shanghai family | 第111-122页 |
| Appendix 3: Consent sheet | 第122-124页 |
